Coles and Flavorite are raising money for Maddy Leewald’s vision

Liam Lund suffers from a type of bone marrow failure syndrome that interferes with the life of a normal 7-year-old boy. However, the choice between tomatoes and capsicum can make a difference.

Liam Lund can’t live the life of a little boy. A 7-year-old child from Leongatha, Victoria, cannot ride a bicycle, jump on a trampoline, or kick his leg with his brother. Give him a world of harm.

In April, Liam was diagnosed with severe aplastic anemia, a type of bone marrow failure syndrome.

His body does not produce enough blood cells and platelets.

“It’s very difficult, especially if you have three boys, but you can’t be a boy and you can’t brawl,” says her mother, Vivienne Lund.

“When he looked at me and said,’Why don’t you let me ride my bike, why don’t you let me jump on the trampoline?’ These are what the doctor asked me not to do. is.

“If he does something as simple as riding a bike and crashing, it’s not a great scenario if something happens.”

The only treatment for BMFS is bone marrow transplantation, and some syndromes can be managed with medication and regular blood transfusions.

But that is not without ongoing challenges. Liam was taking so many medications that he eventually refused to take them and had to insert a nasogastric tube.

“There are always hurdles to overcome somewhere,” says Vivienne.

“Liam wants to be a normal boy, take a shower like everyone else, but his double-lumen Hickman line (used to provide access to veins) can get wet. Showers are difficult because you can’t.

“As a parent, you’re trying to help your child feel normal, but you also have to deal with what’s happening.”

Vivienne is supported by Madeleine Riewoldt’s Vision, a charity that emphasizes the need to fund research for the treatment of BMFS. A telemedicine nurse checks in to her once a week to see how Liam is progressing and what Vivienne needs.

“Without Maddie’s Vision, that would be even more difficult, because that support would help. You know that you are not alone and you have other family members who have the same experience.” She says.

The goal of MRV is that one day no one will have such an experience. In the meantime, it is about studying ways to improve the patient’s daily experience and quality of life.

That is the purpose of the first Fionary Wolt Nursing and Allied Health Fellowship funded by the Maddy’s Month Campaign. The campaign will send 10c to fellowships from all specially marked packs of Flavored Tomatoes and Capsicum sold at the Coles Store until November 24th.

“No one really understands the effects of these illnesses and the horrific side effects of treatment unless they live it. This fellowship is the life of all those who are suffering, as Maddy wanted. I am confident that it will provide an opportunity to make a big difference in the results, “says Maddy’s mother, Fiona Leewalt.

Maddie’s Month is a collaboration between Flavorite, Coles and MRV. Founded in 2016 when Flavorite co-founder Mark Millis was fighting blood cancer, he approached Coles to support MRV.

Since its inception, it will raise $ 500,000 to support the fight against BMW S. The funding helped establish a fellowship at the Peter McCallum Cancer Institute to help launch the Australian Bone Marrow Failure Biobank to analyze patient tissue, blood, and genetic material.

Mark died afterwards, but his sons Chris and Tom are now involved.

“His fight and spirit lives on in us, and he is very proud that we continue to support such a great purpose,” says Chris.

Initially published as follows For a Better Future: Tomatoes Used in the Fight to Overcome Blood Cancer

Read related topics:For a better future

Coles and Flavorite are raising money for Maddy Leewald’s vision

Source link Coles and Flavorite are raising money for Maddy Leewald’s vision

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